This website is a companion to our
book, Parenting Your Premature Baby and
Child: The Emotional
Journey (Fulcrum, 2004). We focus on the
emotional aspects of parenting a preemie from pregnancy through
childhood. We embrace the philosophies of family-centered care
and developmentally supportive care for babies, and we are promoting
the idea of developmentally supportive care for parents.In
our “Professionals Pages” you will find ideas on developmentally
supportive care for professionals, too.We also
believe that collaboration between families and professionals is
essential to health care.
Here's
where you can find comfort, reassurance, and useful information around
the emotional aspects of parenting your preemie from pregnancy,
hospitalization, homecoming, and through childhood. We offer tools
&
support for you to navigate your challenging, amazing, and heartfelt
journey.
You may
copy and
distribute the materials you find on this website, for noncommercial
professional, educational, or personal use, with all copyright and
crediting information intact. All pages are in pdf files for your
convenience.
Here’s where you can find support for
building collaboration between parents of preemies and health care
professionals. Whether you are a parent or a professional, you can find
pages that contain useful tips about communication, sharing medical
information, medical decision-making, family-centered care, and more,
written in a respectful, mutually supportive tone that fosters
dialogue.
Here's where you can find support and practical ideas
for the important work you do with families. These pages are useful
whether you are a new or seasoned provider, whether you work in an
institution or as an independent practitioner, whether you are a
medical or therapeutic professional, and whether you see parents
before, during or after delivery, in the hospital, or after homecoming.
We advocate for developmentally supportive care for caregivers,
which
supports you as you aim to provide developmentally supportive care for
families.
Geared for
professional and educational settings, these pages offer encouragement,
insight, and tips for professionals and families to work together as
collaborative teams in order to provide the best care for babies and
children. We are available to consult specifically with you or your
unit or practice.
Parenting Your
Premature Baby.com is intended to help parents advocate for their
premature babies and children, and to help parents and professionals
collaborate in the delivery of health care. The information presented
in this site is not intended as a substitute for medical advice or
attention. Please consult your health care providers for individualized
professional care.
